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PEDIATRICS Vol. 101 No. 3 March 1998, pp. 486-489
AMERICAN ACADEMY OF PEDIATRICS:
The Role of Home-Visitation Programs in Improving Health
Outcomes for Children and Families
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ABSTRACT |
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Traditional pediatric care is often based on the assumption that parents have the basic knowledge and resources to provide a nurturing, safe environment and to provide for the emotional, physical, developmental, and health care needs of their infants and young children. Unfortunately, many families have insufficient knowledge of parenting skills and an inadequate support system of friends, extended family, or professionals to help with these vital tasks. Home-visitation programs offer an effective mechanism to ensure ongoing parental education, social support, and linkage with public and private community services. This statement reviews the history and current research on home-visitation programs and provides recommendations about the pediatrician's role in supporting and using home visitation.
Home visitation for parents is a widespread
early-intervention strategy in most industrialized nations other than
the United States. In most countries, home health visiting is free,
voluntary, not income-related, and embedded in comprehensive maternal
and child health systems. Although a causative link has not been
demonstrated conclusively, countries with extensive home visitor
programs generally have lower infant mortality than does the United
States. This is despite per capita health spending in the United States
that far exceeds expenditures in other industrialized
countries.1 Denmark established home visiting by law
in 1937 after a pilot program was successful in lowering infant
mortality. France provides free prenatal care and home visits by
midwives or nurses to provide education about smoking, nutrition,
alcohol and other drug use, housing, and other health-related issues.
In England, every prospective mother is visited at home at least once
before birth, with six more visits typically occurring before the child
is 5 years of age.2 In the United States, home-visitation
services have been perceived by many as too costly and unnecessary for
all new families.
Home-visitation programs began in the United States in the late 19th
century. Public health nurses and social workers provided in-home
education and health care to women and children, primarily in poor
urban environments.3,4 At the beginning of the 20th century, the New York City Health Department implemented a home visitor
program, using student nurses to instruct mothers about breastfeeding
and hygiene. This program reduced the high mortality rate of inner-city
infants from summer diarrhea when previous efforts of private agencies
had failed.5 In the late 20th century, as funding for
public health nurses has declined relative to the need, home-visitation
programs have focused on families with special problems such as
premature or low-birth-weight infants, children with developmental
delay, teenage parents, and families at risk for child abuse or
neglect.6
Almost 20 years ago, Dr C Henry Kempe suggested that to ensure
the right of every child to comprehensive care, every pregnant woman be
assigned a home health visitor who would work with the family until the
child began school.7 Insurance companies declined to pay
for this service because of a lack of empirical evidence to support its
effectiveness. Kempe continued to advocate home visiting vigorously,
suggesting that it could play a major role in the prevention of child
abuse. He reiterated these ideas in the 1978 Abraham Jacobi Award
Address.8 In 1980, the American Academy of Pediatrics held
a conference on home visitation. The conferees were unable to find
sufficient research on home visitation to recommend it as national
policy.4
In the 1992 Jacobi Award Address, Sia9 renewed Kempe's
arguments, citing additional information about the effectiveness of
health-related home-visitation programs in Hawaii in improving health
and social outcomes for children. The publication in 1988 of Schorr's
book, Within Our Reach: Breaking the Cycle of
Disadvantage,10 encouraged Sia and other advocates in
Hawaii to move ahead with the first statewide home-visitation program.
Begun in 1993, this program currently is the subject of two rigorously
designed outcome studies and has stimulated research and development of
similar programs in other states.11
A small but growing body of research has supported the
effectiveness of home-visitation programs. The following benefits have been found as an outcome of some, but not all, home visitor
programs:12
Prenatal Effects
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HISTORY OF HOME-VISITATION PROGRAMS
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POTENTIAL BENEFITS OF HOME-VISITATION PROGRAMS
Postnatal Effects
- Fewer subsequent pregnancies14,15
- Increased spacing between pregnancies6,14
- Increased length of maternal employment6,14
- Increased rate of return to, or retention in, school by mothers6
- Fewer emergency department visits16
- Fewer accidental injuries and poisonings resulting in a visit to the physician16
- Decrease in the number of verified incidents of child abuse and neglect6,15,16
- Decrease in physical punishment and restriction of infants, with an increase in use of appropriate discipline for older children14,17
- Improved maternal-child interaction and maternal satisfaction with parenting6,12
- Increased use of appropriate play materials at home16
- Improved growth in low-birth-weight infants12
- Higher developmental quotients in infants visited18
Long-term Effects
A 15-year follow-up study of families who received a mean of nine home visits by nurses during pregnancy and 23 home visits up to their child's second birthday has demonstrated the following long-term benefits:
- Fewer subsequent pregnancies15
- Reduced maternal criminal behavior15
- Decrease in use of welfare15
- Decrease in verified incidents of child abuse and neglect15
- Less maternal behavioral impairment attributable to alcohol and drug abuse15
The observed effect of home-visitation programs seems to be greatest in high-risk populations, such as mothers who are teenagers, unmarried, poor, or have been abused themselves, and in children who are preterm or low birth weight. 15
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PERTINENT VARIABLES IN HOME-VISITATION PROGRAMS |
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Home visitors may be professionals or paraprofessionals, volunteers or paid workers. The services they provide may be social, health-related, or educational and may be targeted to an individual child or to an entire family.6 They are not intended to replace office-based pediatric care, but rather to supplement and reinforce it. Caution is advised in comparing the outcomes of different home-visitation programs, because they may vary in important ways, including the following:
- Use of trained paraprofessionals versus professional nurses
- Volunteers versus paid visitors
- Onset of services (first trimester vs later; before birth vs after)
- Duration of services (eg, until the second birthday or beyond)
- Frequency of visits
- Universal availability to families versus selective application to families at risk
- Training of providers
- Aim and scope of program
- Intervention strategies used (simple social support vs active intervention, education, and advocacy)
- Adequacy of supervision of visitors
- Ratio of families to visitors
- Client variables and demographics
- Level of risk in families served
- Clients' perception of need for services
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ELEMENTS OF SUCCESSFUL HOME-VISITATION PROGRAMS |
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Olds has made a plea that health and human services groups not make recommendations about, design, or implement home-visitation programs without considering the empirical evidence about the types of programs that are more successful.14 Current research indicates that more successful programs contain the following elements:8,14
- A focus on families in greater need of services (as opposed to universal programs that may avoid stigmatizing families but might dilute scarce resources), including families with low-birth-weight and preterm infants; children with chronic illness and disabilities; low-income, unmarried teenage mothers; parents with low IQs; and families with a history of substance abuse;
- Intervention beginning in pregnancy and continuing through the second to fifth year of life;
- Flexibility and family specificity, so that the duration and frequency of visits and the kinds of services provided can be adjusted to a family's need and risk level;
- Active promotion of positive health-related behaviors and specific qualities of infant care-giving instead of focusing solely on social support;
- A broad multiproblem focus to address the full complement of family needs (as opposed to a focus on a single domain such as increasing birth weights or reducing child abuse);
- Measures to reduce family stress by improving its social and physical environments; and
- Use of nurses or well-trained paraprofessionals.
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COST-EFFECTIVENESS OF HOME VISITATION |
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Are home-visitation programs cost-effective? Olds writes that "a major portion of the cost for home visitation can be offset by avoided foster care placements, hospitalizations, emergency room visits, and child protective service worker time incurred during the same period that the home visitor program is provided. The long-range financial savings to the community are in all likelihood substantially greater, as is the reduction of human suffering."6 Olds reports that current home-visitation programs cost between $300 and $1750 per family per year depending on the level and frequency of services provided. Even the most expensive programs pay for themselves by the time the children are 4 years old. Approximately 80% of the cost savings comes from reduction in welfare payments and food stamps, with one third of the savings coming from reduction in unintended subsequent pregnancies.8,14
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NEED FOR EVALUATION AND SAFETY |
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Many small home-visitation programs are being developed and implemented around the country. In the absence of careful design, attention to empirical findings from previous research on home-visitation programs, and high standards for field experimentation, it will be difficult to determine whether public and private monies are well spent. Public funding measures for home-visitation programs should require both continuous examination of outcome measures and the ability to make midcourse corrections.8,14 Accrediting may be a key component to providing some degree of uniformity, accountability, and quality in home-visitation programs. Home-visitation programs also must ensure the safety of their visitors and protect them from the violence often found in the environment of families with the highest needs.19
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LIAISON WITH PRIMARY PROVIDERS |
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Home visitors can be health care advocates to improve access to
providers of health care. Home visitors can be partners with pediatricians and other clinicians, working in the home setting to
provide essential education and supportive services to at-risk children
and families and to improve adherence to medical prevention and
treatment regimens. Home-visitation programs include a "degree of
social support that is difficult to provide in most clinical settings;
outreach and liaison between the pediatrician, the family, and the
community; involvement with socioeconomic issues that directly affect
the well-being of the child and family; reinforcement and follow-up of
preventive care, peer helper support, as well as encouragement, by the
home health visitor who has the advantage of being with the family in
its own home
a more accepting, less threatening setting for the
family."6
Home-visitation programs should be integrated into a community's existing health care system, expanding the effectiveness of private providers, health maintenance organizations, and public health nurses. Visitation programs can provide or supplement services that are constrained by managed care or budgetary reductions. Aspects of home-visitation services for pregnant women, infants, and preschool children already are provided in many communities through public and home health agencies, parent-child services, hospitals, and private agencies. In some areas, home-visitation programs have linked with Head Start and other community-based family support programs to provide continuous services from conception to the start of school.20
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CONCLUSION |
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Home-visitation programs can be an effective early-intervention strategy to improve the health and well-being of children, particularly if they are embedded in comprehensive community services to families at risk.4 Home-visitation programs are not a panacea, sufficient unto themselves to reverse or prevent the damaging effects on children of poverty and inadequate or inexperienced parenting. Successful home-visitation programs require physician support and participation.
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RECOMMENDATIONS |
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The American Academy of Pediatrics encourages pediatricians to:
- Recognize that home-visitation programs are complimentary to office-based practice and part of a continuum of care;
- Become familiar with the outcomes of home-visitation programs and the variables that enhance favorable outcomes;
- Become aware of and coordinate with the types of home-visitation programs that exist in their area;
- Advocate for home health visitors as members of the health care family and partners in obtaining information about factors that affect patients' health and assist in the implementation of health care recommendations. In this process, pediatricians should become familiar with the concept of "The Medical Home" as described by Brewer et al21 and developed by Sia9;
- Support referral of high-risk parents to homevisitation programs as early as possible, ideally before or at the time of the prenatal visit to the pediatrician;
- Be willing to participate in the planning, implementation, and evaluation of home-visitation programs in their communities;
- Be available to participate in the education and evaluation of home visitors or ensure that home-visitation activities have adequate support;
- Advocate that home-visitation programs be incorporated into managed health care plans, on a cost-added basis to avoid being compromised by capitation; and
- Advocate at the local, state, and national levels for the funding, development, and careful evaluation of quality home-visitation programs.
COUNCIL ON CHILD AND ADOLESCENT HEALTH,
1997 TO 1998
S. Kenneth Schonberg, MD, Chairperson
Steven J. Anderson, MD, Chairperson
Committee on Sports Medicine
and Fitness
Judith Ann Bays, MD, Chairperson
Committee on Child Abuse and
Neglect
Paula Duncan, MD, Chairperson
Committee on School Health
Marianne E. Felice, MD, Chairperson
Committee on Adolescence
Joel E. Frader, MD, Chairperson
Committee on Bioethics
Richard B. Heyman, MD, Chairperson
Committee on Substance Abuse
Murray L. Katcher, MD, PhD, Chairperson
Committee on Injury and
Poison Prevention
Peter Michael Miller, MD, MPH, Chairperson
Committee on Early
Childhood, Adoption, and Dependent Care
Mark L. Wolraich, MD, Chairperson
Committee on Psychosocial
Aspects of Child and Family Health
Philip R. Ziring, MD, Chairperson
Committee on Children With
Disabilities
LIAISON REPRESENTATIVES
Emmett Francoeur, MD, FRCPC
Canadian Paediatric Society
Audrey H. Nora, MD, MPH
Maternal and Child Health Bureau
Lucille Perez, MD
National Medical Association
CONSULTANT
Mark D. Widome, MD
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FOOTNOTES |
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The recommendations in this statement do not indicate an exclusive course of treatment or serve as a standard of medical care. Variations, taking into account individual circumstances, may be appropriate.
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The following policy statement is a revision:
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